Clinical Nurse Specialist Paediatric- NF2 related schwannomatosis

Do you have the enthusiasm, interest and energy to be part of delivering excellent care to CYP & families with NF2 related and other Schwannomatosis within Genomic Medicine at St Mary's Hospital, Manchester?

The NF2 team pleased to be able to offer a band 7 Paediatric Specialist Nurse with cross cover to adult services.

This post provides an exciting opportunity to join the established nationally commissioned service for NF2-related Schwannomatosis. This service consists of four clinical / administrative co-ordinating centres (Oxford, Cambridge, Guys and St Thomas's London and Manchester). Manchester is the coordinating centre for the North-West region and provides care for paediatric and adults with NF2.

You will also need to establish effective working relationships across the organisation and National NF2 Network to continually improve our service delivery, patient experience and provide expert clinical care to complex patients. This post is based in Manchester, but will involve some travelling within the region to visit satellites centres, patients and their carers at home.

The team provides support to families Monday-Friday from 08:00 - 7.00.

• Work clinically to provide expert care to complex patients with chronic long term needs.
• Act as key member of the MDT in planning, co-ordinating and evaluating care,prioritising need and ensure excellent service standards are maintained.
• Assess paediatric and adult patients, using advanced history taking and assessment skills in a clinic environment, home visits and on the telephone or by email (many of the patients are deaf).
• Participate in service development, policy change and business planning within the NF2 service.
• Organise patient information days, support patient groups, and establish and maintain links with relevant charities.
• Liaise with local and peripheral oncology teams to co-ordinate specific investigations, clinical reviews, treatment and data collection for patients receiving Bevacizumab treatment
• Develop relationships with health care agencies and other NHS trusts across the North West region, referring to and liaising with services appropriately.

Join Manchester University NHS Foundation Trust (MFT) and become part of a 30,000 plus strong team, delivering exceptional care to over 1 million people every year. As the largest provider of specialist services, and our Oxford Road Campus in Manchester, the largest health academic campus in Europe, we are forward-thinking, committed to clinical excellence and driven to deliver innovation, and continuous improvement.

Whether you’re beginning your career or taking the next step, MFT offers a stimulating and supportive environment where your contribution truly matters. Our Hive Electronic Patient Record system enables safer, smarter, and more efficient ways of working - empowering you to deliver the best possible outcomes for our patients.

You’ll be part of a collaborative, multi-disciplinary community, working alongside professionals from a wide range of clinical backgrounds. Together, we push boundaries, share knowledge, and deliver care that transforms lives.

At MFT, you’ll find a workplace where everyone is respected, supported, and encouraged to thrive. We offer clear clinical pathways for professional development, helping you grow your skills and achieve your ambitions.

Your journey at MFT is more than a job - it’s an opportunity to make a lasting impact. We’ll support you as you shape the future of healthcare, one patient at a time.

For further details / informal visits contact: Name: Raji Anup Job title: Matron/ Lead Clinical Nurse specialist Email address: Telephone number:

Neil Franklin

NF2 service Manager

Manchester Centre for Genomic Medicine

Clinical Genetics Services

6th Floor, Saint Mary's Hospital

Oxford Road

Manchester

M13 9WL

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